Luteal Luminescence: A PMDD Guide for Neurodivergent Minds
I discovered how to embrace my body's natural rhythms and transform challenges into strengths. Join me as I navigate PMDD while honoring my unique neurological needs.
When the World Becomes Too Bright
Each month, there comes a moment when everything feels overwhelming. The world seeps into every pore of my being. Reality's volume cranks up, turning the gentle hum of the refrigerator into a roar. Fabric against my skin feels like sandpaper. Light slices through my eyes, reaching deep into my soul.
But the assault runs deeper than my senses.
Emotionally, I'm a raw wire, exposed to elements. Every feeling magnifies, blurring boundaries. Joy seems impossible, peace unreachable. Spiritually, I'm untethered, disconnected from anything larger than this immediate discomfort. Practices meant to ground me feel hollow and exhausting.
Even my partner, my anchor, becomes unbearable. His breathing is too loud, his presence too close. His very being in my space feels intrusive. Guilt wraps around this irritation like a suffocating blanket of shame. I know he means well, I know he loves me. But knowing doesn't stop the crawling sensation when he reaches for me.
Comfort in any other cycle phase is suddenly impossible. My body turns into a fortress, with gates barred to affection, which feels overwhelming, like drowning in honey when all I need is air. Patience, once a carefully cultivated virtue, evaporates under the sun's harshness, not by choice but by necessity.
I don't want to engage with the world or anyone in it. Self-improvement feels insulting to my current state. I want to retreat, to go feral, baring my teeth at anyone who approaches. I long to burrow into blankets and emerge only when this storm has passed.
The air itself feels sharp against my skin. I teeter between rage and tears, a live wire, a raw nerve backed into a corner by my own biology. This descent strips away pretense and leaves me facing something ancient and untamed within.
This is PMDD for me.
Unraveling the Fog
For over a decade, I lived in a fog of medication; SSRIs, SNRIs, antipsychotics, dissociating and disconnecting me, yet never bringing relief. No one asked me to track my cycle. Crashes labeled as depression went unnoticed as deeper patterns rooted in my body.
A turning point came with my autism and ADHD diagnosis in 2021. Finally, I began piecing together a narrative where my brain wasn't broken, just different, working in harmony with my body. This realization unveiled the wisdom of cyclical living.
Tracking my cycle didn’t reveal clarity as a spotlight would; rather, it was a dance performed in shadows, an intricate choreography of steps slowly revealing PMDD as my constant partner. For eight years, I moved in circles, twirling around elusive truths, collecting data points like rhythmic beats.
The luteal phase became a crescendo where symptoms converged: suicidal ideations, sensory meltdowns, and dissociation, each a note in a haunting melody pointing to a hidden pattern.
Recognizing this dance was just the opening act. It led me into a complex ballet of research, a pas de deux of discovery as I explored academic articles, engaged in forums, and experimented with my own body as if it were the stage.
This monthly reckoning demanded more than passive observation; it was an emotive performance requiring my full engagement. Two professional burnouts set the tempo, forcing me to confront my pace, while a career crash unveiled the unsustainable masquerade I had been maintaining. Each step, each misstep, became part of the dance of understanding.
Chest reduction surgery helped me find home in my body. I came out as nonbinary, shedding societal expectations carried like stones in my pockets. Gradually, I weaned off Wellbutrin, discovering who I was under the medication fog.
Through unraveling and rebuilding, shedding what no longer served me, I came to terms with PMDD. This understanding didn't arrive as an epiphany but through years of slow recognition, becoming someone bold enough to name my invisible tormentor.
Tracking offered stabilization, transforming perceived failures into understanding. It allowed me to embrace a narrative of spirals, not rigid lines.
Learning to Love the Spiral
Linear productivity always buckled under rigid expectations. Spiral thinking, however, allowed me to circle back, to shift, and to repeat transformations gently. Living cyclically—hormonally and neurologically—freed my brain and body to find a rhythm, allowing rest rather than rigidity.
The Dance of Desire and Demand
Exploring PMDD and cyclical living as a neurodivergent person in a heteronormative relationship unraveled profound lessons. Facing PMDD means confronting desires and demands. It's about asserting myself at home, where belonging begins. Living with my partner illuminated unresolved desires, highlighting their impact on my PMDD symptoms.
Cyclical living invites me to delve into my deeper desires. Engaging in heartfelt conversations with my partner fosters a rich intimacy, both with him and within myself. True self-understanding thrives on connection; grounding alone is not enough. We all need a community. Those who menstruate benefit from the support of a diverse village, encompassing both those who share our experiences and those who do not.
Naming desires in the follicular and ovulatory phases aligns with peak energy and communication. Voicing needs with joy and anticipation mitigates luteal phase dysphoria. This shift from self-betrayal to empowerment involves acknowledging the nervous system's cues and responding with care.
Voicing and asserting my desires isn't just about intimacy or physical pleasure but about fostering joy and balance. PMDD teaches that while bodily demands are vital, tending to mental and emotional desires brings deeper fulfillment.
A Personal Toolkit
Managing PMDD requires layering support across my being. Daily, I rely on Vitamin B6, St. John's Wort, and ashwagandha to stabilize my mood. During the luteal phase, Pepcid, Benadryl, and Midol bring ease.
Connection manifests through slow stretching, gentle walks, and art therapy. Nourishing foods and feeding my cravings grounds me. Meditation offers stillness, and tracking my cycle serves as a compass, guiding me through life's demands.
Supporting my body, I listen for shifts without shame, embracing these aspects of myself with understanding and compassion. This journey isn't just about finding balance but about honoring each phase, each emotion, and my place in my own story.
With every cycle, I find empowerment in acknowledging my unique rhythm and living in harmony with my true self.
Introducing the Cyclical Living Calendar
Understanding the rhythm of your menstrual cycle can transform the way you live and interact with the world. This calendar is designed to harmonize with a realistic cycle length of 30-35 days, guiding you to align your activities and self-care practices with each phase. Embrace the flow of your natural cycle and discover how each stage holds unique opportunities for growth, reflection, and connection.
Guiding Your Journey
Menstrual Phase (Days 1-7): Time to retreat and rejuvenate. Focus on inner reflection and engage in calming activities.
Follicular Phase (Days 8-14): Harness creative energy and explore new possibilities. Social interactions and projects thrive in this phase.
Ovulatory Phase (Days 15-18): Strengthen your connections and enhance communication. Participate actively in collaborative efforts.
Luteal Phase (Days 19-35): Reflect on personal needs and establish boundaries. Prioritize self-care and emotional preparation as you transition to the next cycle stage.
This calendar serves as a guide to help you navigate each phase with intention, aligning your life with the natural ebb and flow of your cycle. Adjust it to fit your unique experiences and needs.
Thank you for sharing your experience and tips.
I don't have a diagnosis of PMDD, but I've often wondered, as i experience extreme mood changes and overstimulation in my luteal phase.
I will definitely keep these tips in mind. ❤️🔥
I relate with so much of your description of your experience. You’ve been able to put words to something, I’ve struggled with for years. Thanks so much for sharing this.
The part about not being able to stand your partner and feeling that guilt, really hit me too. For me as well, my partner is my anchor, and it is so hard to feel all of that at the same time. And they did nothing to earn how I feel during that phase.
Glad you found Pepcid too, that was an absolute lifesaver for me. I love how you shared your calendar and thinking about things cyclically. I just dread the time, but you’ve offered a mindset shift and I’m here for it!
Thanks again for sharing!